KetoCal® Air Travel Tips

Traveling-with-KetoCalTraveling for the holidays? We want to make sure you have no trouble taking your KetoCal with you. Here are some tips for air travel with KetoCal:

Ship it ahead of time:

When possible, many families prefer to ship KetoCal to their destination ahead of time. When you purchase KetoCal from Nutricia, shipping is free for orders over $25. You can order by calling 1-800-365-7354. We recommend that you order a week or so in advance so that you don’t have to worry about whether or not your formula will get there in time for your arrival. Be sure to ask your family/friends/hotel staff to store the KetoCal indoors at room temperature (it should not be stored outdoors in cold weather).

Flying with KetoCal:

Medical Necessity Letter: When flying with KetoCal, we recommend that you get a letter from your doctor or dietitian explaining that KetoCal is a medically necessary formula used with the medical ketogenic diet for the management of epilepsy/Glut1DS/PDHD. You may not need it, but it never hurts to have it in case you have any trouble getting your KetoCal through security.

Checked Luggage: If you are packing KetoCal in your checked luggage, it might be useful to include the medical necessity letter in your bag in case it gets searched by the Transportation Security Administration (TSA).

Carry-On Bags: If you are bringing KetoCal in your carry-on bag, be prepared for some additional screening and give yourself extra time so that you aren’t stressed about missing your flight. Be sure to pack a little extra formula in case of flight delays, which are fairly common during peak travel days around the holidays.

As you likely know, there are limits to the quantity of liquids you can carry on when flying (3.4 fluid ounces or 100 milliliters). Luckily, formulas and medically necessary liquids are exempt from this quantity limit, although they require extra screening. As soon as you arrive at security, notify the TSA agent that you are traveling with medically necessary liquid formula. Have the medical necessity letter from your healthcare provider handy in case you need it. If you do not want the formula to go through an X-ray or to be opened, notify the TSA officer. You will have to go through additional screening in this case, so be sure to give yourself extra time.

Powders may also require additional screening at TSA checkpoints. When you arrive at security, notify the TSA officer that you are traveling with medically necessary powdered formula. Have the medical necessity letter from your healthcare provider handy in case you need it.

  • Ice packs: Ice packs, freezer packs, gel packs, and other accessories used to keep your formula cool are allowed through security as long as they are frozen or partially frozen. Like formula, they may require additional screening.

For more information, check out the TSA guidelines for travel with medications, including liquids, and for travel with children, including formula.

Happy Holidays and Safe Travels!

Mallory

KetoCal is a medical food for the dietary management of intractable epilepsy and is intended for use under medical supervision. Talk with your healthcare provider about whether KetoCal is right for you.

The medical ketogenic diet for epilepsy should be used under medical supervision.

Medical Ketogenic Diet –A Dietitian’s Tips for Summer Break

As summer break approaches, you may have some anxiety about being out of your regular keto routine. In today’s guest blog post, ketogenic dietitian and Keto Ambassador Lindsey Thompson, MS, RD, CSP, LD, shares her tips for managing your child’s medical ketogenic diet over summer break. Thank you, Lindsey!


Summer break can be school-free splendor for kids (and parents!); however, the relaxed schedule can pose some challenges for kids with epilepsy who are on a medical ketogenic diet.

Many kids and teens with epilepsy rely on the structure and schedule that the school year provides. Furthermore, the medical ketogenic diet tends to work best when provided on a schedule. As we transition into summer, here are some tips for managing the medical ketogenic diet in a more spontaneous environment:

Create a schedule for summer

Start with a monthly calendar and identify the different types of days (such as typical, weekend and vacation days). Then create templates for times meals and snacks will be offered depending on the day. The schedule you create can be similar or different to typical school days depending on what is best for your child. Include all of your children in the schedule so that everyone is expected to follow it. Visually display the schedule and use sticker charts if needed for motivation.

Plan ahead

Pick a day or time to prepare ketogenic meals and snacks for the days or weeks ahead. Many of you already do this during the school year, and there is no need to discontinue this for summer. You’ll also want to plan for extra snacks given that your schedule may be more variable in the summer with sports games, visits to the zoo or other family outings. Planning ahead will help you avoid a “keto emergency” i.e., your child is starving and you don’t have a meal or snack weighed out and ready-to-go.

If you’re taking a vacation, you’ll also want to do plenty of planning related to the travel itself (you may need letters from your physician describing your child’s diet for airplane travel, etc), acquiring ketogenic-friendly food in your vacation destination (you may need to call the local grocery stores or the hotel itself) and having adequate accommodations (such as a refrigerator and microwave in your room).

Drink plenty of fluids!

Fluid is important for children on medical ketogenic diets in order to avoid many of the possible side effects of the diet. Your child will generally need more water in the summer to stay hydrated. Ask your dietitian how much fluid your child needs if you are not sure.

Have your child/teen involved with the preparation of his or her diet

Since your child will likely have more time on his or her hands, there will be a great opportunity for him and her to be involved in meal preparation. You can make an activity out of it by having your child make shopping lists, prep or weigh foods, cut fruits or vegetables (if age appropriate) and assemble meals. A benefit here is that children and teens who are involved in meal preparation are more likely to eat and enjoy what is prepared. Additionally with more active involvement, your child may take more ownership of his or her diet …and this may roll over into the school year as well!

Have fun! Use the extra time to get creative with new recipe ideas.

Here are some suggestions for fun summer treats:

Ketocal Blueberry Smoothie:

Ketocal Creamy Gelatin Treat

Ketocal Cheese and Tomato Pizza

Ketocal Ice Cream

I hope these tips will help ease you and your child on the medical ketogenic diet into a safe and fun summer!

-Lindsey

I was paid by Nutricia for my time to write this blog post, however, my opinions are my own. 

KetoCal is a medical food and is intended for use under medical supervision.