Summer Camp, Epilepsy, and the Medical Ketogenic Diet

summer campIt’s hard to believe that summer vacation is almost here! Right about now, many of you are looking for summer activities, such as camps, to keep your little one busy over the break. Summer camp is an invaluable childhood experience full of fun, friendships and personal growth. But when your child has epilepsy, finding a suitable summer camp can be a bit more challenging.  If your child is on a medical ketogenic diet for seizure management, it can be even more complicated. Fortunately, there are camps that can accommodate special circumstances and there are even camps specifically for children with epilepsy. With some extra research and planning, you can likely find a camp that will work for your little one. If you are eager for your child to experience summer camp but are unsure how to make it happen, today’s post will provide you with some resources to guide you.

Choosing a Camp:

The first thing to consider is the type of camp that will work best for your child. In some cases, a standard camp (that is, not specifically for children with epilepsy) may work fine as long as the staff is made aware and prepared in case of a seizure.

In other cases, a camp specifically for children with epilepsy, with medical personnel on site, is the best option. Some parents prefer this option because it allows their child to make friends with other children with epilepsy and just be “one of the gang”.  You and your child’s health care provider are the best judge of which option is most appropriate for your family.

If you are searching for an epilepsy camp near you, the Epilepsy Foundation provides a great list of camps in each state.  You can also contact your Epilepsy Foundation affiliate to learn about scholarship options. One epilepsy camp that is located near us and that we love is Camp Great Rocks. This camp is run under the medical management of the Children’s National Medical Center Neurology Team. If you live close to the DC Metro area, be sure to check it out–It’s a very special place!

Once you choose the type of camp, you should also consider whether you are interested in a day camp, where your child attends during the day but comes home in the evenings, or overnight camp, where your child sleeps over at camp. There are also overnight camps for both children and their caregivers. Again, you are the best judge as to which option is most appropriate for your child.

Taking the Medical Ketogenic Diet to Camp:

These days, many camps are able to accommodate children with special diets, such as children with food allergies, so they may be able to accommodate a medical ketogenic diet, so long as you discuss it ahead of time and provide specific instructions. If your child is attending an epilepsy camp, they may already be familiar with the medical ketogenic diet. Note- KetoCal® 4:1 LQ works great as a snack or at mealtimes while at summer camp since it is easily transportable, requires no weighing or mixing, and does not require refrigeration.

Preparing for Camp:

Once you’ve selected a camp for your child, you can take steps to prepare the staff and help keep your child safe while having a great time. The Epilepsy Foundation provides some awesome tips and resources, listed below:

Hopefully this post has provided you with some tips and resources to help guide your camp selection process but, as you know, the best advice comes from other parents. Have any of your children attended summer camp on the medical ketogenic diet? What advice or guidance would you offer other parents who are considering it?

-Mallory

KetoCal® is a medical food for the dietary management of intractable epilepsy and is intended for use under medical supervision. Talk with your healthcare provider about whether KetoCal is right for you.

Ten Things That Only a Keto Parent Would Understand

We are excited to welcome back Dana Haddox-Wright, keto mom and guest blogger extraordinaire! Dana lives in Connecticut with her husband and two adorable daughters. Her older daughter has Dravet Syndrome and follows a medical ketogenic diet to manage her seizures. Many of you will relate to Dana’s list of “Ten Things that Only a Keto Parent Would Understand” and hopefully it will put a smile on your faces!


ten things only a keto parent understands

  1. If “measuring to the tenth of a gram” was an Olympic sport, we would fill the medal podium. One of the best things about nailing a perfect measurement of heavy cream, egg, oil, or mayonnaise is being able to share the accomplishment with another keto parent knowing that s/he will fully understand what a big deal it is, and will probably give you a well-deserved high five (or virtual high five in my case).
  2. It’s all about that spatula. Admit it. We have our favorites. If we see a good deal on “the one,” we buy the entire lot. Our motto is “no morsel left behind,” and we should expect nothing less from our utensils.
  3. Size DOES matter to us. Yes, when it comes to our keto-related staples, no “standard” sizes will do. We ALWAYS buy the industrial sized items found at our favorite wholesale store, and will rejoice in the idea of not having to shop for them again for weeks. Whether it is gallon-sized bins of mayonnaise, triple-stacked flats of eggs, or double rolls of parchment paper, we do what we have to do in order to ensure we never run out of what we use most. And lugging them from the car into the house does qualify as a workout. No flabby arms here.
  4. We have a system for organizing our recipes that only we understand. And I am certain that some of us even have stacks of papers with hand-written recipes which may or may not be stained with oil or butter. The funny thing is that no matter how unorganized my recipes might be, when I need to find something I know exactly where to find it in my mound of notes.
  5. We have highly developed ninja-like reflexes when it comes to “non keto-friendly” food getting into the hands (or mouths) of our children. We can snatch any carb-filled goody away from our kids within milliseconds if they are either offered something or if they find it on their own. We are also not opposed to digging food out of their mouths.
  6. We are forced to be short-order cooks. Making different meals for different people becomes pretty much a daily occurrence. We learn to cook quickly and efficiently for our entire family. And the mess of dishes left is reason enough to hire a bus boy.
  7. We often have a space designated for all of our keto paraphernalia. It usually will include lots of dry food items and small containers with color coded labels (and those beloved spatulas). Let us not forget the variety of cups, bottles, and even straws we also have around in order to ensure we get enough water into our kiddos.
  8. We have more silicone items in our kitchen than in a plastic surgeon’s office, and probably spend nearly as much money as we would having a procedure done. Candy molds, cupcake liners, and baking pans (oh my!). If it does not stick, we must get it.
  9. We get every last bit of food into our kids at any cost. We see any minute speck of food left in a bowl, on a plate, or in a glass. We do not miss a thing, and I should add that we could probably work in a forensics lab.
  10. It is not uncommon to have a love/hate relationship with the keto diet. We really want to hate it because it takes up every last minute of our lives, but we love it for all of the benefits that following it has for the children. I hope that I speak for a lot of parents when I say that I would rather spend 30 minutes preparing a meal for my daughter, than I would witnessing her seize for another second.

Dana

I was paid by Nutricia for my time to write this blog post, however, my opinions are my own.

Tips and Recipe Ideas for Celebrating Easter or Passover on the Ketogenic Diet

Like most holidays, Easter and Passover have food-related traditions that can make it slightly more complicated to manage your child’s ketogenic diet. For today’s post, we’ve compiled some tips and recipe ideas to help you manage your little one’s ketogenic diet over the upcoming spring holidays.

Easter:

Instead of filling plastic eggs and Easter baskets with traditional candy, you can fill them with non-food treats (like stickers, jewelry, toy cars, etc.) or homemade keto treats.  The Charlie Foundation has some awesome recipes for keto chocolate candy and keto coconut candy.

Our basic keto cookie recipe (available in a 3:1 or 4:1 ratio), which makes the keto-equivalent of basic sugar cookies, is a great staple recipe for holidays. You can make them festive using Easter-themed cookie cutters and carb-free food coloring to color the cookie dough or the Truvia®* that you sprinkle on top (keto sprinkles!).

Jell-O® eggs, made using egg-shaped molds (such as this one), are popular Easter treats for kids. You can make a keto version using our KetoCal gelatin recipe.

If your family typically serves ham on Easter, you can make your little one a delicious Ham & Cheese Tart (one of my personal favorite keto recipes).

If carrot cake is a tradition in your home, KetoCook has a great recipe for keto carrot cake.

For more ideas, check out the Easter recipe ideas that Matthew’s Friends recently shared on their Facebook page (please keep in mind that these recipes are calculated using the program used in the UK so work with your dietitian to adjust).

Passover:

The Epilepsy Foundation has a very helpful article all about managing the ketogenic diet over Passover. It includes many tips for substitutions that can be made to traditional Passover foods to make them more keto-friendly.

Matzo is a typical Passover food, but the high carb content usually makes it off limits for keto kids. If Matzo Ball Soup is a favorite in your family, you can make a keto-version for your child using the Charlie Foundation’s “No Matzo-Ball” Soup Recipe.

Macaroons are another common food consumed during Passover. Matthew’s Friends has a recipe idea for keto-friendly macaroons made of shredded coconut, egg whites, corn flour and artificial sweetener (please keep in mind that these recipes are calculated using the program used in the UK so work with your dietitian to adjust). If corn flour is not allowed, you could try substituting with almond flour.

 

Whether your family is celebrating Easter or Passover this week, we hope that you have an enjoyable holiday with your family!

-Mallory