Parent Guest Blog: Tips for Making the Ketogenic Diet Fun

We are delighted to welcome our very first guest blogger to KetoConnect. Dana is a mother of two adorable little girls, one of whom is on the ketogenic diet. We want to thank Dana for sharing her family’s keto story and for these wonderful tips for making the ketogenic diet fun for kids.

 

5 Tips for Making the Ketogenic Diet Fun

Two years ago, my daughter’s doctor recommended that we put her on the ketogenic diet as a way to help curb her uncontrolled seizures. As a busy mother of two, I felt overwhelmed at the possibility that I might have to add yet another thing to the laundry list of items that had consumed my life up to that point. I was scared that I would not be able to follow the diet as strictly as it required. I was worried that I would not have time to devote to it. Most of all, I was questioning whether it would work for my daughter.

Then we took the leap and put her on it. Within days, we noticed improvements in her behavior and her seizure control. She was having status seizures every 6 weeks, and was not yet potty trained (at nearly 4). After starting the diet, she was fully potty trained within a week and went 6 months without seizing. She also seemed happier. Now, she tends to seize only when overheated or very sick.

It took about 6 months before I started creating my own recipes. I eventually made it my mission to make her food that other kids would want. My goal is to cook meals that my daughter will not only like, but that she will be proud to eat. Here are my top 5 ways of making the ketogenic diet fun:

  1. Listen to your child– if they are able to verbalize what they want, then try to make it work. – One day my daughter said she wanted carrots and cucumbers. Up to that point, I had not yet created a recipe that included these items. I knew she liked hot dogs, so I made her a meal that included hot dogs, cream, oil, and a side of carrots and cucumbers.
  2. Keep their favorites handy – sometimes they want to eat the same meal all the time. –Back to the carrots and cucumbers. One day, I asked my daughter what she wanted for breakfast. Her response, “sausage, carrots and cucumbers.” I asked her again for lunch. Again, “sausage, carrots and cucumbers.” I think you know where I am going with this. Needless to say, I always keep hot dogs, sausage (each nitrate-free and filler-free), carrots, and cucumbers in the fridge.donut
  3. Be creative – you do not always have to follow recipes word-for-word. – I like to make my daughter the pizza from the keto cookbook, but I do not always like having to whip egg whites, so I bought several shapes of silicone molds. I simply add unwhipped egg whites to the mix and make her “pizza bread” or “pizza bagels”. It actually takes less time. – Another time, she asked for a donut. I did not have a recipe for donuts, but I had a recipe for pancakes. So I poured pancake batter into a donut mold, and voilà, she had a keto donut that she loved!
  4. Make them feel awesome – “Geez, I wish I could eat princess food.” – The fact of the matter is that, as parents we feel guilty about many things that are out of our control. We do not realize how food-based our culture is until we are presented with huge limitations. I was afraid that I would be depriving my daughter. No more Happy Meals. No more cookies and ice cream. She would be forced princess cupcakesto eat food that looked unappetizing and tasted bad. That does not have to be the case. It does not take that much more time to make their food look delicious. Keto-friendly food coloring and flavoring can make something simple look and smell divine. – For my daughter’s 5th Birthday, she wanted to have a Barbie cake. Well, I did some research and reached out to my keto-related support groups. I made it happen. Not only did I make her a Barbie “cupcake” but I also made her friends cakes that looked identical to hers.
  5. Not all accidents are bad – the frozen Ketocal story. – Sometimes my daughter loves a Ketocal shake and sometimes she does not. We use the Ketocal shakes a lot when we travel or when we do not have time to cook. We were visiting my mother and had to leave to attend an event. My mother thought she would just stick a Ketocal drink into the freezer to chill it. Well, she forgot about it until my daughter mentioned she was hungry. My mother pulled a very frozen Ketocal out and panicked. Then she thought, “Why don’t I serve it as ice cream?” And it was a huge hit. My daughter asks for it to this day. “I want my ice cream.”

So in the end, my suggestion to parents who are new to the diet is to take a deep breath. It can be overwhelming and daunting, but if the diet works, there are more benefits than drawbacks. It does not have to be expensive or overly time-consuming. You just have to focus on what your child is interested in at the time. Eventually you will find your groove.

-Dana

Top Five Kitchen Essentials for the Ketogenic Diet Chef

When a child goes on the ketogenic diet, his mom and dad become experts of many trades.  After a few months, parents will be math whizzes (measuring food to the tenth of a gram), they’ll learn to spot hidden carbs a mile away, and most impressively, they’ll become absolute magicians in the kitchen. Keto cooks quickly learn that there are some kitchen supplies that you simply can’t live without.

Although we’re not nearly as skilled as some keto parents we know, we do spend quite a bit of time creating and testing new KetoCal recipes, so we’ve come across some tools that we’ve found to be especially helpful. Below is our list of the top 5 kitchen essentials for the ketogenic diet chef.

1. Silicone spatulas:

Silicone spatulas, especially the mini ones, are perhaps our most cherished keto cooking utensils. They work great for getting every last drop out of a dish (which is critical in keto cooking).

2. Parchment paper:

We find that parchment paper is a must for the ketogenic baker. Use it to line baking pans and cookie sheets so that foods don’t stick to the pan. Another perk is that it saves time cleaning up! Note that parchment paper and wax paper are not the same thing- Parchment paper is oven-safe and wax paper is not (Yes, we learned that the hard way!).

3. Silicone bakeware:

Silicone bakeware is awesome for cooking keto recipes because it a) makes it super easy to remove food from the pan, b) keeps food from sticking to the pan and c) keeps all of the oil in the finished product. If you allow the food to cool before removing from the pan, the excess oil will absorb back into the food so you don’t have to worry about losing some of the fat.

4. Mini prep bowls (lots of them):

When preparing keto meals, you need small bowls to weigh each ingredient before combining them. Stocking up on mini prep bowlswill save you time because you won’t have to wash bowls in between weighing multiple ingredients.

5. Mini whisks:

We find these most helpful for recipes involving eggs. Usually the recipe will call for a given amount of eggs, raw, and well-mixed. To prepare this,  you crack an egg into a mini prep bowl (see above), mix it well, then measure the amount that you need for the recipe. The regular size whisk doesn’t fit into the mini bowl and we find that a fork just doesn’t mix quite as evenly. The mini whisk works great for this!

You can usually find these kitchen tools in kitchen supply stores or online department stores.

Keto parent chefs- Which kitchen tools can’t you live without? Please share your top 5 in the comment section below!

Mallory & Ellen

Tube-Feeding and the Ketogenic Diet

feeding_tubes_bannerThe ketogenic diet can be much easier to manage when your child is tube-fed since the diet can be given with a special ketogenic formula. In addition, research suggests that an all-liquid ketogenic diet may even be more effective, perhaps because there is less room for errors with measuring foods[1].

Tube-feeding can be given in a variety of ways. Whether given via a bolus, syringe, or feeding pump, the ketogenic diet can easily be given with a feeding tube. Ideally, the feeding schedule should be similar to the way your child was previously fed, just with the new formula.

As usual, the ketogenic diet will be started in the hospital under close medical supervision. You will work with your doctor and dietitian to determine the appropriate ketogenic diet ratio and amount of formula you should give to your child daily. Oftentimes your child will be gradually transitioned from their previous formula to the new ketogenic formula over a period of a few days. While in the hospital for diet initiation, your ketogenic diet health care team will teach you everything you need to know about preparing, administering, and managing your child’s new ketogenic diet when you go home.

KetoCal is a nutritionally-complete ketogenic formula that can be used to provide the ketogenic diet for tube-fed children. It comes in a 3:1 or 4:1 ratio, and as a ready-to-feed liquid or easy-to-prepare powder. KetoCal is milk-based so it may not be appropriate for children who have milk protein allergies. However, your dietitian can put together a modular ketogenic tube-feed with a variety of ingredients that are safe for your child’s food allergies. The KetoCal 4:1 powder and KetoCal 4:1 LQ are both low in lactose, so they are usually okay for children with lactose intolerance.

Tips for Tube-Feeding KetoCal:

  • KetoCal LQ Unflavored is the ideal formula for tube-fed children because it is ready-to-feed. No need to mix! Just shake and administer the formula! In some cases, your child’s dietitian may recommend adding extra water or other ingredients to the formula, so be sure to follow these instructions carefully.
  • If your child is using the KetoCal powder, be sure to mix your formula per the instructions given by your child’s dietitian. For best results, be sure to mix with the correct temperature of water to allow the formula to dissolve fully. It is recommended to use water between 113-122 °F. For more information and tips on mixing KetoCal powder, check out our KetoCal mixing video on YouTube!
  • Once the powdered formula is mixed, store in a closed container in the refrigerator and use within 24 hours. Discard after 24 hours and mix a new batch. Be sure to mix or agitate the formula just prior to feeding since some settling may occur.
  • Once the KetoCal 4:1 LQ has been opened, it can be stored in a closed container in the refrigerator for up to 24 hours.
  • For both the KetoCal Powder and KetoCal LQ, the recommended hang time is 4 hours. The hang time refers to the amount of time the formula can safely remain at room temperature after preparation.
  • Some settling of Ketocal may occur in the feeding bag which is a normal feature of the product. This settling should not block the feeding tube, however, it is recommended that the tube is flushed with water between each feed. It may also help to occasionally agitate the feeding bag.

If you have any questions or concerns, contact your child’s health care team for assistance. For questions about KetoCal, you can also call our Nutrition Services support line at 1-800-365-7354, Option 2.

For assistance with getting insurance reimbursement for KetoCal, contact our Nutricia Product Coverage Navigator program.

Ellen

[1] Kossoff EH, McGrogan JR, Freeman JM. Benefits of an all-liquid ketogenic diet. Epilepsia. 2004 Sep;45(9):1163.