NEW KetoCal Connect Program to Support Keto Parents & Caregivers!

KetoCal_Connect_logoThe KetoCal® Team spoke with several keto parents to ask- What information and resources would have been helpful for you when your child started the ketogenic diet? Based on that feedback, we created the KetoCal Connect Program. The goal of KetoCal Connect is to help patients start and stay on the ketogenic diet successfully by providing caregivers with the information, support, and resources they need to manage the diet at home*.

There are 4 pillars of the KetoCal Connect program:

  1. Trusted products

We want you to have access to our trusted products from day 1 of your ketogenic diet journey. KetoCal has been used by healthcare providers all over the world for over 16 years. If you or your child is going to start the ketogenic diet or has recently started, ask your healthcare provider for a free sample of KetoCal or Liquigen® and a KetoCal Connect New Patient Starter Kit.

  1. Coverage & Cost Assistance

Our goal is to make sure that everyone who needs KetoCal has access to it. Our team of coverage specialists is available to help walk you through the process of getting KetoCal covered by your insurance, WIC, or Medicaid. When these are not options, the KetoCal Assistance Program (KAP) is available for qualifying families to purchase KetoCal at a discounted price.

  1. Caregiver Support

Remember, you are not alone – there’s a whole community behind you. Let us help you connect to nutrition experts and keto families just like you. Get one-on-one help with KetoCal or Liquigen questions by calling one of our Nutrition Specialists at 1-800-365-7354, Option 2. For everyday tips, check out our caregiver support blog. Visit our social media pages to stay up-to-date with KetoCal and to connect with other keto families just like you!

  1. Tasty Ketogenic Recipes

We know how important it is to find ketogenic variations of your child’s favorite foods (and that favorite foods can change overnight!). Check out our recipe database to find a variety of sweet and savory ketogenic recipe ideas that can be adapted according to your child’s specific nutritional needs.

Learn more about the KetoCal Connect program and get support at your fingertips by visiting www.MyKetoCal.com/KetoCalConnect.

*Please note, KetoCal must be used under the supervision of a healthcare provider. KetoCal Connect was created to help support caregivers and is not intended to replace the supervision and guidance of a medical professional.

-Mallory Eastman
The KetoCal Team
Nutricia North America

KetoCal Supports Rare Disease Day 2015!

KetoCal is a medical food used by individuals with intractable epilepsy who are on a ketogenic diet. Within the category of intractable epilepsy, there are many different seizure disorders, many of which are rare diseases. KetoCal is also used by individuals with rare metabolic disorders that are managed with a ketogenic diet, including GLUT1 Deficiency Syndrome and Pyruvate Dehydrogenase Deficiency (PDHD). Many individuals in our KetoCal community are living with rare disease, so we wanted to take this opportunity to show our support for Rare Disease Day 2015rdd-logo

Below is a list of just some of the rare diseases within the ketogenic diet community. Please note that this list contains only the rare diseases that we are aware of from talking with caregivers and healthcare providers of individuals living with these diseases; If we are missing one that is important to you, please let us know. If you get a chance, please take a moment to click on the links to learn more about these rare conditions.

Rare Disease Day 2015 is on February 28th. To learn more about Rare Disease Day, and how to get involved, visit http://www.rarediseaseday.org/.

Rare Disease: Numbers: Learn more:
GLUT1 Deficiency Syndrome About 500 cases have been diagnosed worldwide http://www.g1dfoundation.org/
Pyruvate Dehydrogenase Deficiency (PDHD) Several hundred cases reported https://www.rarediseases.org/rare-disease-information/rare-diseases/byID/413/viewFullReport
Myoclonic-Astatic Epilepsy (Doose Syndrome) Estimated 1 in 10,000 http://doosesyndrome.org/
Tuberous Sclerosis Complex Estimated 1 in 10,000 http://www.tsalliance.org/pages.aspx?content=2
Rett Syndrome Estimated 1 in 10,000 females (very rare in males) https://www.rettsyndrome.org
Severe Myoclonic Epilepsy of Infancy (Dravet Syndrome) Estimated 1 in 30,000 http://www.dravetfoundation.org/
Infantile Spasms (West Syndrome) Estimated 2-3.5 in 10,000 http://www.infantilespasmsinfo.org/index.php
Lennox-Gaustaut Syndrome Estimated  1 in 50,000-100,000 http://www.lgsfoundation.org/
Angelman Syndrome Estimated 1 in 15,000 http://www.angelman.org/
Landau Kleffner Syndrome Unknown http://www.epilepsy.com/learn/types-epilepsy-syndromes/landau-kleffner-syndrome
Alternating Hemiplegia of Childhood Estimated 1 in 1,000,000 http://ahckids.org/ or http://cureahc.org/